Mission & Vision ―
THE VOICE OF SICKLE CELL
African Family Autism & Sicle Cell Group (AFASSG) was founded in 2020 to give a national voice to the thousands of British across the country who live with sickle cell disease and their families. We bring together individuals, organisations and stakeholders as we elevate the public’s understanding and awareness of this debilitating, chronic disease. We are proud to be at the forefront of improving the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions.
OUR MISSION
To advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.
OUR VISION
To be the leader promoting and advancing initiatives focused on people affected by sickle cell conditions worldwide.
WHAT WE DO ―
We promote the search for a universal cure for all people in the world with sickle cell disease.
We join with our 10-plus community-based member organisations located in Areas to collectively serve over 5,000 children and adults who are living with or impacted by sickle cell disease and their caregivers.
We train twenty of Community Health Workers (CHWs) across the nation to assist families and help them manage their health care strategy and access to care.
We advise on current medical news affecting you through SCDAA’s Medical and Research Advisory Committee (MARAC).
The committee, comprised of world renowned SCD experts, provides vital disease, trial and therapy updates as they happen.
We lead by building leadership skills. The SCDAA Leadership Academy helps community-based organizations and SCD professionals become even more productive, with capacity building and information.
We educate throughout the year by holding our Masterclass Series as well as our Annual National Convention to foster the exchange of the latest scientific and clinical information through innovative training seminars and educational workshops, interactive panel discussions, advocacy lectures and special events.
We advocate so SCD warriors and families know they are not alone. Together with our member organisations, we have created a strong network that includes caregivers, clinicians, stakeholders and experts, nationally and across the globe. We partner together with organisations like the American Red Cross to encourage blood drives and raise awareness.