

Become a Member
Our member organisations are at the heart of AFSSG. These groups provide direct support and advocacy to community members across London and allow us to reach more people and make a greater impact. We offer membership to independent, 501(c)(3) nonprofit organisations across the UK to join us in our efforts to provide education, increase awareness, support individuals living with sickle cell disease and sickle trait and their families and find a universal cure for this life-threatening disease.
Why Become a Member Organisation?
AFSSG is the national leader in sickle cell outreach and advocacy. We value the work of our member organisations, and we work collaboratively across the country to affect positive change at the national, state and local levels. By joining us as a member organisation, you demonstrate your commitment and dedication to your cause and community. AFSSG members also gain access to exclusive support from the national office to support their reach and mission.
Membership Benefits:
Leadership & Capacity Building: Members-only sessions like the monthly Leadership Academy strengthen our member organisations’ capacity as well as management, advocacy, and engagement skills.
During our two-day, in-person Advocacy Days events, members learn more about key policy issues and meet with federal legislators on topics affecting the sickle cell community.
Advocacy: AFSSG strengthens the sickle cell voice through collective advocacy efforts, including our two-day, in-person Advocacy Days events where members learn key policy issues and meet with federal legislators.
Members also stay informed through our quarterly Legislative Update newsletter, which highlights the latest federal developments affecting the community.
Peer Networking: Connect and collaborate with over 55 like-minded nonprofit organisations to exchange strategies and insights that strengthen community impact.
Timely Updates: Stay informed through exclusive SCDAA newsletters and members-only communications highlighting medical news, research developments and important legislative policy updates.
Collective Impact: Membership in a national network of 55-plus SCD community-based organisations spanning thirty states, collectively serving more than 500,000 children and adults living with or impacted by sickle cell disease and their caregivers.
Discounts: Save on registration for AFSSG’s Annual National Convention to learn about the latest scientific and clinical information through innovative training seminars, educational workshops, and other special events.
If you interested in being a AFSSG member organisation, please contact: +44 7389 039222 or email: info@afssg.org